Steven Keating is a doctoral student at Massachusetts Institute of Technology (M.I.T.), who collected and researched his own patient data, leading to the discovery of his own brain tumor. His story is featured in The New York Times here >> http://www.nytimes.com/2015/04/01/technology/the-healing-power-of-your-own-medical-data.html
In addition, there is an initiative in the United States called ‘OpenNotes’ that is exploring the benefits of doctors sharing medical notes with their patients. The initial project consisted of 105 volunteering primary care doctors working at three large and disparate institutions and 19,000 of their patients who were registered to use a patient portal to view and review their notes. After 12 months, 99% of patients wanted to continue to have access to their notes. You can read about the study here >> http://www.bmj.com/content/350/bmj.g7785
Posted in: Brain